In recent decades, thousands of people have been through the journey of discovering their connection with Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). On average, it takes over 12 years for individuals to gain proper recognition of their condition, due to the huge range of symptoms and a lack of clinical awareness. This means an average 12 years of not living with an accurate diagnosis.
As a small, volunteer-led charity we are strongly focussed on individuals, with the goal of making a positive impression on those impacted by EDS and HSD. We provide support by actively advocating and educating the general public and medical community through national campaigns; financially supporting individual sufferers and their families through offering grants; and supporting clinical research activities.
INSPIRING INDIVIDUALS
Mind Body EDS® Founder, Laura Sylvester-Dodson has received pioneering surgery on both sides of the Atlantic whilst surviving with Ehlers-Danlos syndrome.
FundraisE for our charity
We raise money to directly support diagnosis and to offer grants to help individuals with the pursuit of treatment and healthcare support. If you'd like to fundraise as part of our team, we'd love you to join us.
Leave a legacy
Imagine a world where every person with EDS and HSD is diagnosed sooner, received the medical care they need, and is supported to live their best life. By leaving a gift in your will, you can make that vision a reality. Every gift - big or small - helps fund genetic tests, specialist support, medical advocacy, and life-changing research. Make a lasting difference today. Mind Body EDS® are proud partners of Remember A Charity.
Have a ballot place in an event?
We welcome ALL those with ballot places in any sporting event to fundraise for Mind Body EDS®. By choosing us, you’ll be giving yourself a stronger purpose to race whilst making a real positive impression on the lives of those suffering with Ehlers-Danlos syndromes and Hypermobility Spectrum Disorders. So if you’re lucky to have gained a place, we’d love for you to contact us here. We rely upon your efforts and donations to support us in being able to continue and fulfil our mission.
Stay Connected
Be the first to hear about new grants awarded, inspiring stories, upcoming events, and ways you can help.
Join us for an evening of fun, laughter, and friendly competition at our Charity Quiz Night in support of Mind Body EDS charity
During the Spring of 2018, we started a campaign to raise awareness through Instagram of the length of time it can take to reach a diagnosis of EDS and HSD. Click below to read the individual stories of some of our followers who shared their story via #myEDSdiagnosis
our latest from instagram
